Mental Health, Well-Being, and Psychosocial Support for Patients

As people around the world report significant and sustained increases in symptoms of depression and anxiety, it has become abundantly clear that COVID will impact our mental health just as hard as our hospitals and economies. Social-distancing and stay-at-home orders, job loss and insecurity, uncertainty and worry--all contribute to a growing crisis that is falling hard upon...


Telemedicine and Access to Care

An important consequence of the global pandemic has been to greatly accelerate the use of telemedicine. While this development has enabled continued contact between patients and physicians during COVID, it has also exposed the pervasive inexperience of our medical systems with digital and virtual models of care. This session will bring together patients, physicians, and advocates to discuss...


Safely Returning to Clinical Trials

Since the coronavirus pandemic started, clinical trial recruitment and enrollment is down 40-60% across therapeutic areas. As the quarantine period ends, we are left with many questions about how to safely move forward with research, especially for patients suffering from serious, life-threatening diseases that might increase their risk of dying from COVID-19. This session will bring together the...


Going Virtual: Best Practices for Advocacy Organizations

A major change wrought by COVID is the transition to virtual communication. Advocacy organizations face the daunting task of restructuring their entire communication frameworks to meet this new reality. This session brings together experts from academia, advocacy, and industry to discuss how to build a virtual organization, run a virtual conference, and initiate virtual fundraising, so...


Coalitions & Collaboration

In a post-COVID world, advocacy organizations will face increased pressure to meet their mandates with fewer resources and fundraising capability. Coalitions offer a simple and effective way to pool resources, share information, improve problem-solving, and increase awareness. In this session, we will investigate the impact of coalitions on patient advocacy and explore best practices for forming...


Welcome & Introduction

This is an unprecedented time for healthcare systems around the world. We, as patient advocates, are rushing to understand the impact on our communities and to figure out the best way to offer aid, resources, and support. This first session will focus on framing the problems that we all face so we can begin to tackle them together. Our panel will open the conversation by addressing...


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