Advocacy for Advancements: Patient Insight Influencing Action - 12:00 PM
Let's take a step back. It's the New Year after a year unlike any we could have imagined! However, in the midst of the disruption and disaster wrought by COVID, the advocacy community has accomplished some great things. Join us on January 14th at the COVID Advocacy Exchange as we take stock of the year by discussing the accomplishments that did happen and consider what more we can do in 2021!
Building Stronger Relationships Across Healthcare Through Empathy - 12:00 PM
As healthcare systems have increased in size, it has become difficult for patients, doctors and caregivers to have meaningful conversations. And … it can sometimes feel like physicians, patients and advocates, and industry all speak different languages. Throw in the intense pressure of the COVID pandemic and the lack of good communication between these groups can leave people pulling...
Taking Action to Correct Health Inequities - 12:00 PM
The pandemic has brought the topic of health inequalities to the forefront of people’s minds across the globe. We live in an era where technology has made healthcare more available than ever before, and yet we struggle to deliver fair and equitable care to those who need it most. Now we have a chance to reassess and correct systemic imbalances in our health systems. What will we do with this...
Moving Forward and Rebuilding - 12:00 PM
This year, COVID has presented all of us with many unknowns. As we continue navigating these challenging times, we could all use a little extra support. During this live session of the COVID Advocacy Exchange, keynote speaker Adam Grant will discuss moving forward and rebuilding, together. As an organizational psychologist, Adam...
Getting Back to Work - 12:00 PM
COVID has caused unprecedented disruption to the global economy, leaving millions of people without jobs, or a plan for how and when to return to work. While some companies have developed detailed strategies to maintain safety, many others do not have the means or infrastructure to invoke health screenings or social distancing rules. Compounding this, there has been little discussion of...
Getting Back to Normal: Care by Putting Patients First - 12:00 PM
If there is one positive thing that can be taken from the COVID pandemic, it is the opportunity to step back and reassess how our healthcare systems provide care. Whether uncovering areas for improvement, beginning to address health inequalities, or creating new opportunities for collaboration, COVID has demonstrated the strengths and weaknesses of our systems. As we return to treatment...
Telemedicine and Access to Care - 12:00 PM
An important consequence of the global pandemic has been to greatly accelerate the use of telemedicine. While this development has enabled continued contact between patients and physicians during COVID, it has also exposed the pervasive inexperience of our medical systems with digital and virtual models of care. This session will bring together patients, physicians, and advocates to discuss...
Safely Returning to Clinical Trials - 12:00 PM
Since the coronavirus pandemic started, clinical trial recruitment and enrollment is down 40-60% across therapeutic areas. As the quarantine period ends, we are left with many questions about how to safely move forward with research, especially for patients suffering from serious, life-threatening diseases that might increase their risk of dying from COVID-19. This session will bring together the...
Going Virtual: Best Practices for Advocacy Organizations - 12:00 PM
A major change wrought by COVID is the transition to virtual communication. Advocacy organizations face the daunting task of restructuring their entire communication frameworks to meet this new reality. This session brings together experts from academia, advocacy, and industry to discuss how to build a virtual organization, run a virtual conference, and initiate virtual fundraising, so...
Coalitions & Collaboration - 12:00 PM
In a post-COVID world, advocacy organizations will face increased pressure to meet their mandates with fewer resources and fundraising capability. Coalitions offer a simple and effective way to pool resources, share information, improve problem-solving, and increase awareness. In this session, we will investigate the impact of coalitions on patient advocacy and explore best practices for forming...
Welcome & Introduction - 12:00 PM
This is an unprecedented time for healthcare systems around the world. We, as patient advocates, are rushing to understand the impact on our communities and to figure out the best way to offer aid, resources, and support. This first session will focus on framing the problems that we all face so we can begin to tackle them together. Our panel will open the conversation by addressing...