Apr 08
Addressing Gaps in Healthcare Through Real World Advocacy - 12:00 PM
So far in 2021, the COVID Advocacy Exchange has brought the global advocacy community together to not only hear from each other, but to prioritize and begin to tackle global health issues. Discussions in the first quarter of the year have focused on "Patient Insights Influencing Action," "Harnessing Our United Strength to Create Meaningful Change," and "Outlining Our Paths to Impact and Change."
Mar 23
Resilience: Leading in a Reset World Workshop - 11:00 AM
As our companies operate against the backdrop of an unfolding global pandemic and a massive societal change, a new reality is emerging. Disruption that seemed like a sprint is proving to be a marathon. The “new normal” is never returning.
Mar 11
Outlining Our Paths to Impact and Change - 12:00 PM
As individuals experience these topics in different ways, our first Working Group session was focused on understanding meaning to establish a common baseline from which to grow. As we continue to build a strong foundation for success, our second Working Group session on March 11 will identify those...
Feb 11
Harnessing Our United Strength to Create Meaningful Change - 12:00 PM
With more than 25,000 people engaging in the COVID Advocacy Exchange in 2020, including 288 different advocacy organizations from 95 countries, it is evident there is a need for the platform, the connections and resources it provides. Not surprisingly, there is also a desire to expand on the established foundation and elevate our united strength to bring about real change. We asked - and you identified - four...
Jan 14
Advocacy for Advancements: Patient Insight Influencing Action - 12:00 PM
Let's take a step back. It's the New Year after a year unlike any we could have imagined! However, in the midst of the disruption and disaster wrought by COVID, the advocacy community has accomplished some great things. Join us on January 14th at the COVID Advocacy Exchange as we take stock of the year by discussing the accomplishments that did happen and consider what more we can do in 2021!
Dec 17
Building Stronger Relationships Across Healthcare Through Empathy - 12:00 PM
As healthcare systems have increased in size, it has become difficult for patients, doctors and caregivers to have meaningful conversations. And … it can sometimes feel like physicians, patients and advocates, and industry all speak different languages. Throw in the intense pressure of the COVID pandemic and the lack of good communication between these groups can leave people pulling...
Nov 12
Taking Action to Correct Health Inequities - 12:00 PM
The pandemic has brought the topic of health inequalities to the forefront of people’s minds across the globe. We live in an era where technology has made healthcare more available than ever before, and yet we struggle to deliver fair and equitable care to those who need it most. Now we have a chance to reassess and correct systemic imbalances in our health systems. What will we do with this...
Oct 08
Getting Back to Work - 12:00 PM
COVID has caused unprecedented disruption to the global economy, leaving millions of people without jobs, or a plan for how and when to return to work. While some companies have developed detailed strategies to maintain safety, many others do not have the means or infrastructure to invoke health screenings or social distancing rules. Compounding this, there has been little discussion of...
Sep 10
Getting Back to Normal: Care by Putting Patients First - 12:00 PM
If there is one positive thing that can be taken from the COVID pandemic, it is the opportunity to step back and reassess how our healthcare systems provide care. Whether uncovering areas for improvement, beginning to address health inequalities, or creating new opportunities for collaboration, COVID has demonstrated the strengths and weaknesses of our systems. As we return to treatment...
Jul 23
The Patient Voice & Patient-Focused Drug Development - 12:00 PM
Patient-focused drug development is a systematic approach to help ensure that patients’ experiences, perspectives, needs, and priorities are captured and meaningfully incorporated into clinical testing. This week, you can learn from experts how this new paradigm in drug development is impacting the way researchers and pharma companies think about trials and how it is making healthcare more...
Jul 16
Reshaping Healthcare: Thinking Differently after COVID - 12:00 PM
COVID-19 has exposed the inadequacy of healthcare systems around the world and brought public attention to government and private institutions alike. The lack of preparedness points to inefficiencies, lack of resources, and the impact of for-profit healthcare. COVID offers an opportunity to reshape healthcare in ways that were impossible just a few months ago. The pandemic may be the...
Jul 09
Preventive Care & COVID - 12:00 PM
COVID-19 has exposed the inadequacy of healthcare systems around the world and brought public attention to government and private institutions alike. The lack of preparedness points to inefficiencies, lack of resources, and the impact of for profit healthcare. COVID offers an opportunity to reshape healthcare in ways that were impossible just a few months ago. The pandemic may be the...
Jul 02
Practical Solutions for Patients during COVID - 12:00 PM
The end of quarantine has little meaning for the millions of patients with chronic medical conditions around the world. While the healthy begin to get back to some semblance of a life, those with pre-existing conditions are left to wonder when, and if, that will be a possibility. With so many basic questions left unanswered, the need for simple, practical solutions to patient problems is greater...
Jun 25
Mental Health, Well-Being, and Psychosocial Support for Patients - 12:00 PM
As people around the world report significant and sustained increases in symptoms of depression and anxiety, it has become abundantly clear that COVID will impact our mental health just as hard as our hospitals and economies. Social-distancing and stay-at-home orders, job loss and insecurity, uncertainty and worry--all contribute to a growing crisis that is falling hard upon...
Jun 18
Telemedicine and Access to Care - 12:00 PM
An important consequence of the global pandemic has been to greatly accelerate the use of telemedicine. While this development has enabled continued contact between patients and physicians during COVID, it has also exposed the pervasive inexperience of our medical systems with digital and virtual models of care. This session will bring together patients, physicians, and advocates to discuss...
Jun 11
Safely Returning to Clinical Trials - 12:00 PM
Since the coronavirus pandemic started, clinical trial recruitment and enrollment is down 40-60% across therapeutic areas. As the quarantine period ends, we are left with many questions about how to safely move forward with research, especially for patients suffering from serious, life-threatening diseases that might increase their risk of dying from COVID-19. This session will bring together the...
Jun 04
Going Virtual: Best Practices for Advocacy Organizations - 12:00 PM
A major change wrought by COVID is the transition to virtual communication. Advocacy organizations face the daunting task of restructuring their entire communication frameworks to meet this new reality. This session brings together experts from academia, advocacy, and industry to discuss how to build a virtual organization, run a virtual conference, and initiate virtual fundraising, so...
May 28
Coalitions & Collaboration - 12:00 PM
In a post-COVID world, advocacy organizations will face increased pressure to meet their mandates with fewer resources and fundraising capability. Coalitions offer a simple and effective way to pool resources, share information, improve problem-solving, and increase awareness. In this session, we will investigate the impact of coalitions on patient advocacy and explore best practices for forming...
May 21
Welcome & Introduction - 12:00 PM
This is an unprecedented time for healthcare systems around the world. We, as patient advocates, are rushing to understand the impact on our communities and to figure out the best way to offer aid, resources, and support. This first session will focus on framing the problems that we all face so we can begin to tackle them together. Our panel will open the conversation by addressing...